The Global Steering Committee of physicians and patients, who developed the initial content and materials for HS Online, include Prof. Dr. Gregor Jemec of Denamark, Prof. Dr. Christos Zouboulis of Germany, Neel de Place of Denmark and Tara Burton of the United Kingdom.
Tara Burton has been living with hidradenitis suppurativa since the age of 14, but was not diagnosed until the age of 24. In 2006, Tara lost her job as an Accounts Assistant due to ill health. This unfortunate event, and the lack of existing knowledge and support available for the HS community, inspired her to help develop the British Association for Hidradenitis Suppurativa (BAHS) in 2007, a key patient advocacy group in the United Kingdom. Two years later, this became the first registered United Kingdom charity dedicated to HS. Now known as the Hidradenitis Suppurativa Trust (HST), the charity is run by Tara and 7 other trustees who volunteer their time to the organization.
Neel has been living with HS since 1993, but only received a diagnosis six years ago when she was referred to the dermatology ward at Roskilde Hospital. She is chairman of the Danish HS patient association, for which she has been instrumental in establishing relationships with and proving support to other patients.
Over the last three decades, Dr. Jemec has been at the forefront of HS research, with dozens of publications contributing to the definition and management of the disease. Currently serving as the Congress President of the European Society of Dermatology and Psychiatry, Dr. Jemec is a professor and founding chairman of the Department of Dermatology at the University of Copenhagen Roskilde Hospital.
A chief architect of the Hidradenitis Suppurativa Foundation in the US (and its former president) and the active president of the European HS Foundation, Dr. Zouboulis has been studying HS for more than 25 years. He was the chair of the steering committee for the German Guidelines of HS Treatment published in 2012 and, together with Dr. Jemec, coordinates the preparation of the European Guidelines of HS treatment. A professor with more than 500 publications, Dr. Zouboulis is currently chair of the Departments of Dermatology, Venereology, Allergology and Immunology at Dessau Medical Center.